Quality registers provide those of us in the healthcare system with a structured way to monitor various illnesses and to improve treatment.
By being involved in the national quality registers, you contribute to improving healthcare. The more people who take part, the safer the results are statistically. We then use the results in our improvement work.
All quality registers are subject to very strict confidentiality, and the information is encrypted so that no one can link data to any particular individual. When the information is no longer needed in the registered, it is deleted.
As a patient, you have the right to know how the information stored about you in the quality registers is used. For example, the information may sometimes be used for research purposes.
Your clinic can help you to obtain an extract of the information about you that is held in the register. You also have the right to know whether your information has been taken from a source other than the patient medical records or from you yourself.
Inclusion or not in the registers is entirely voluntary, and your choice will not affect the care you receive. If you do not wish to be included, notify the clinic you attend. You can change your decision at any time.
Want to find out more?
If you want to know which quality registers your own clinic reports to, you are welcome to ask your treatment provider.